I couldn't believe it when the nurse practitioner said that we could be home as early as THIS Saturday!!! I wasn't ready for the news, but Miss Ella has been doing so well that they don't see the need to keep us here. We were only on this floor to give her time to tolerate her feedings and to get educated on how to take care of her at home. Well Miss Ella is a CHAMP when it comes to drinking her bottles! She took two complete feedings by bottle today, and polished off the majority of the other feedings. They are considering pulling out the NG tube tomorrow since she has taken the majority of her feedings by mouth. We are SO thrilled that she's doing so well, because we were fully prepared to be here a minimum of two weeks to work on this. The doctors and nurses are completely amazed by this little one!
She did have here echocardiogram today, and she was a good baby during the entire thing. She just has the sweetest disposition! She sat on the table for an hour while the tech worked on her, and she fussed very little. I was SO proud of her! The results were good from the echo. Dr Forbess' nurse practitioner came in afterward and let us know that they were happy with their findings. I was thrilled! Then, I spoke to the cardiologist and asked him to give me his interpretation of the results, and he stated what we've known all along. His concern is the left side...it needs to grow with her, or else we'll have to come back for the Norwood procedure. He mentioned that recovery from the Norwood down the line would be pretty difficult for Ella. Then he had to step out for a phone call, and he said that he would be sure to catch up with me in the morning. I'm going to choose to think that she will not be back for the Norwood, and we are all going to pray for her little heart to grow.
I'll keep you posted on our departure. I'm insanely nervous about taking her home. Oh, did I mention that she's not on ANY heart medications?!?!? I was shocked when I found out that the cardiologist discontinued her very last heart med yesterday. He simply thought she didn't need it! That also contributes to my anxiety about going home!!!
Wish us luck the next few days and we'll let you know when we're discharged.
We love you,
The Morrison Family